In November 2016, after a summer of sleeping issues, complaints of neck pain, loss of appetite and constipation, Drew was diagnosed with Paediatric Chordoma. An ultra-rare childhood cancer, that affects 1 in 20 million.
His journey was fraught with complications from the outset, due to the rarity of the cancer, the lack of documented cases and absence of a firm treatment plan.
His battle was brief and brutal but, bravely fought for one so young.
He took his final breath at home with mummy and daddy on the morning of February 24th 2017, just 16 weeks from diagnosis.
Since losing Drew, his parents have tried to find some meaning in all the heartache. Their local and wider community raised money whilst Drew was in treatment and they both felt strongly that this money should be used to help other families in the same situation.
The Drew Barker-Wright Charity is a legacy for their sweet and gentle little boy.