Together, it’s the only way
Drew arrived in this world on February 1st 2013. He was an only child and a gift his parents had never thought would happen.
He was an absolute joy from the moment they first held him in their arms. He grew into an inquisitive little man with a lust for life. He loved to dance, to sing, to swim, and he ran everywhere.
He was never afraid to engage anyone in conversation, and left many people with lasting memories of his witty turn of phrase.
He made friends easily and always showed compassion for others. He was a warm and caring child.
In November 2016, after a summer of sleeping issues, complaints of neck pain, loss of appetite and constipation, Drew was diagnosed with Paediatric Chordoma. An ultra-rare childhood cancer, that affects 1 in 20 million.
His journey was fraught with complications from the outset, due to the rarity of the cancer, the lack of documented cases and absence of a firm treatment plan.
His battle was brief and brutal but, bravely fought for one so young.
He took his final breath at home with mummy and daddy on the morning of February 24th 2017, just 16 weeks from diagnosis.
Since losing Drew, his parents have tried to find some meaning in all the heartache. Their local and wider community raised money whilst Drew was in treatment and they both felt strongly that this money should be used to help other families in the same situation.
The Drew Barker-Wright Charity is a legacy for their sweet and gentle little boy.
What we want to achieve
DREW’S CHARITY AND ITS OBJECTIVES
To fund specific research into Paediatric Chordoma and to support the development of targeted drugs to treat those affected.
To provide financial support to the newly diagnosed, aiming to help them through the initial shockwave of diagnosis
To supply a gift for the bedside of newly diagnosed infants.