We will never forget the terrifying first few days at Birmingham Children’s Hospital. Learning about Drew’s diagnosis and its’ rarity was difficult to comprehend. We seemed caught in a whirlwind of activity that we had little control over and none of which we fully understood. As we frantically searched the internet for answers, the rare nature of paediatric chordoma became quickly apparent. We felt isolated and alone.
We were miles away from home, in a city we didn’t know and due to the urgency of our move to Birmingham, we had very few personal items with us.
One of the promises we made to ourselves in the aftermath of Drew’s illness was that we wanted UK based parents, dealing with this rare cancer, to feel they had been acknowledged by a UK organisation specific to their child’s diagnosis. Something that was missing on our journey.
Consequently, we have put in place a grant application to provide some financial assistance to help you through the shockwave of diagnosis and the costs you may incur during your early days in hospital.
You will need to download the attached application form and fill it in with the help of your hospital support worker. Clic Sargent, who are aware of The Drew Barker-Wright Charity can also be of assistance with this.
Once complete, consents given and all boxes ticked, this form needs to be returned to our charity address, which can be found at the bottom of this page.
We will process and validate your claim and issue the funds as quickly as possible.