If you are reading this, it is likely that your child or a child close to you has been diagnosed with chordoma – a rare form of bone cancer, particularly in children.
Finding out that your child has cancer of any type can be overwhelming, but it can be especially so when it is a very rare cancer. It is likely you have never heard of chordoma before, which can make an already devastating situation all the more confusing and scary.
The following information has been written with all of this in mind. It is intended to provide accurate information about chordoma affecting children in an open and honest way. It will hopefully answer some of your questions or help to clarify what the doctors have told you, but we know some of the information will be upsetting to read. In the Support section of the site you will find links to various services that can support you along the road ahead – please make use of these if you think it would help.
Words in bold are further explained in a glossary.