#TeamDrew

RESEARCH

#TeamDrew

RESEARCH

So, why is funding research for ultra-rare childhood cancers so important?

Only £3 in every £100 spent on cancer research goes to childhood cancers. Treatment options, cure rates and research for paediatric chordoma fall well beneath other childhood cancers.

When we set up the DBW Charity as a legacy to our little boy, we felt passionately about funding specific projects to help progress chordoma research and improve the chances of survival for other children and their families.

To read more about the research that has been undertaken from our annual donations, please click on the relevant year below:

2020 – Funding Model Characterisation and Drugs Screening Programme

2020 – Funding the Development of a Blood Test to Monitor Disease Progression

2019 – Funding in-depth genomic molecular characterisation of two paediatric chordoma cell lines and PDX models.

2018  – Funding the study into the genetic, epigenetic and transcriptomic changes found in the chordoma’s of children and adults.

Since its founding, The Drew Barker-Wright Charity has supported the work of Adrienne Flanagan and her UK Chordoma Study. If your child has been diagnosed with paediatric chordoma and you would like to reach out to the team to join the UK based study and make sure they are aware of your diagnosis, please contact their coordinator at The Royal National Orthopaedic Hospital.

Biobank and Chordoma Coordinator

E: rno-tr.histopathology@nhs.net T: 0208 909 5347

What is chordoma?

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Symptoms and diagnosis

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How you might be affected following your child’s diagnosis

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How and where is chordoma treated?

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If your child needs help with feeding during their treatment 

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After treatment

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If treatment fails

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Research

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Support

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