Chordoma is a rare form of bone cancer. It most commonly occurs in the spine or the skull. Chordoma is treatable. Unfortunately, though, following treatment it can come back (usually in the same place) – this is called a relapse or local recurrence. In some cases, it can also metastasise (spread) to other parts of the body.
The base of the skull and the bones of the neck (known as the cervical spine) are the most common locations of chordoma in children. More rarely, it can occur in the bones at the bottom of the spine (in what is known as the sacrum and coccyx regions, or the tail bone).
Most chordoma patients are in their 50s and 60s. Chordoma in children (called paediatric chordoma) is very rare, making up only about 5% of all cases.
Chordoma affects 1 in 20 million children every year – that’s around 350 children worldwide, and around 3 children in the UK. Although the rarity of chordoma in children may seem incredibly isolating, the fact that you have found this site means you are no longer alone.